Thursday, July 29
7:00 p.m. - 9:00 p.m. Hospitality Gathering and Discussion Groups
Topics: Fundraising and Support Groups
Becky Hatfield, Parent Support Specialist, University of Utah Hospital
Stephanie Lerner-Ernsteen, President, Evanston Hospital's ISCU Parent to Parent
Friday, July 30th
8.30 - 9.00 Registration
9.00 - 9.15 Introductions
9.15 -11.15 The importance of strong communication between parents and professionals while in the neonatal unit and after discharge
Frank Manginello, M.D.,Neonatologist, author of Your premature baby
11.15 -12.00 Imagine: Insights on the emotions of professionals as they provide
medical care and families as they cope with an overwhelming crisis.
12:00-1.30 p.m. Lunch/Vendor booths open
1.30 - 3.30 p.m Choice of afternoon session:
#1 Helping Professionals Help Parents
Mara Tesler Stein, Psy.D., Clinical Psychologist
Michael T. Hynan, Ph.D. Associate Professor, Clinical Psychology, U. of Wisconsin-Milwaukee,
#2 Advocacy for children with long-term medical issues.
Sandy Gardner, RN, MS, CNS, PNP
Allison Martin, MPA. Preemie-child listowner
4:00 - 5:00 p.m. Panel discussion
Saturday, July 31
9.00 - 9.15 Introductions
9.15 - 11.15 Promoting partnership between parents and neonatologists
Guan Koh, M.D., Neonatologist, Kirwan Hospital, Townsville, Australia
12.00 - 1.30 Lunch/Vendor Booths Open
1.30 - 3.30 p.m Choice of afternoon session:
#1 Social Support for Parents of Premature Infants: A Model for Bridging the Communication Gap
Edward A. Martinelli Jr., M.Ed., father of a premature infant
and
Ethical and Humane Decision-Making in the NICU: Parents and Doctors Collaborating in the Gray Zone
Deborah L. Davis, Ph.D., Developmental Psychologist, author of Empty cradle, broken heart and Loving and letting go
#2 After Discharge: Communicating With a New Set of Professionals
Michael Tsangaris, M.D., Pulmonologist
Sheena Carter, Ph.D, Developmental Psychologist
4:00 - 5:00 Panel Discussion
5.00 - 5.30 Conclusion Frank Manginello, M.D.
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Conference fee: $125 for parents, $150 for professionals
Hotel and meals not included in the conference price
Registration A form can be obtained from the conference home page at
http:/www.vicnet.net.au/~garyh/conf99.htm
or by phoning (248) 543-4169.
Lunches Can be ordered each day for $15, or people can make their own arrangements
to suit
Accomodation A block of rooms has been booked at the Radisson Hotel, 1725 East Algonquin,
Schaumberg, (Ill.). To reserve your room, phone (847) 397-1500. The room rates are $72/night for a single and $82/night for a double room (10% tax added).
The hotel provides a free shuttle service from O'Hare Airport.
Further enquiries can be directed to Elaine Sayers, Director of The Alexis Foundation (248) 543-4169